Last Tuesday we met with the Psychologist who completed Sophie's Neuro-Psych evaluation. The doctor gave us a lot of information and guidance for moving forward. It was a lot of information to process in one sitting and we don't yet have the formal report but I can give some of the general findings. On the positive side, her intelligence (IQ) tested normal for her age group and most of her academic skills were the same, there was no obvious learning disability (including dyslexia), and they do not believe an IEP is necessary. They did identify memory struggles but based more on inattention than any cognitive impairment. They also identified some reading concerns. The worry is that although in first grade we "learn to read" in later grades we "read to learn" and the Psychologist stated that she may fall further behind academically in the years to come, if her reading is not really focused on and supported now.
One of the Psychologist's main concerns was the Temporal Lobe seizure activity seen in the most recent EEG. She let us know that this is the area of the brain where memories are stored, filed appropriately, and processed. She believes that this is the cause of her regression in school since there is no learning disability present. It seems as if these seizures, which appear to happen while she is sleeping, may be causing her to lose information and knowledge she had previously memorized. The official report won't be sent out to the doctors until next week, but I did call the Epileptologist to update her today. The nurse called back later in the day (I continue to be floored by their response and attention to our concerns) and based on what I shared, they have ordered the over-night video EEG at Lurie Children's in Chicago. Hopefully we'll get that scheduled tomorrow.
We meet with the Epileptologist on the 17th and I will post again after that.
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