Where'd the rug go?

After a few wonderful weeks of Sophie being the girl she was a couple years ago again, over the past few days it's unfortunately changed.  Maybe Saturday her mood returned to how it was before the medicine: crabby.  We could see an obvious change from the girl we'd rediscovered to the girl we've come to know so well.  Our first thought was that she wasn't sleeping well again.

We began putting her to sleep earlier, letting her sleep later, and encouraging naps.  Despite that, I was noticing moments when her speech would slow, and she'd stare out--I didn't see her eyes flutter up though...until yesterday at dinner.  I've been suspecting that she's been having her seizures again since the weekend but last night we confirmed it.  As we sat eating dinner, Joe and I looked at one another and nodded our heads--she'd definitely "fluttered" away.

Today I called the neurologist and spoke with a nurse.  She took down the changes and said she'd call me back.  After about three hours, she did.  She let us know we need to have Sophie's blood work done again before her morning (6:45 am) dose of the medicine.  Luckily the lab opens at 6:00 so we'll get in there and hopefully be able to reclaim our routine without much difference.  The nurse said once the results were faxed to them, they'd call us.

A friend of mine who is the nursing director of the hospital I work at, suggested yesterday when I mentioned things were shifting, that perhaps her Depakote level had become toxic which would cause similar results.  She guessed we'd need blood work done--she was right about that. I'm hopeful that it's not toxic and she just might need a little more--I'd hate to know we've been giving her this medicine for two weeks at a toxic level.

So, wish us luck tomorrow morning with the blood draw.  Say a little prayer for us if you pray. Luckily, after it we'll be picking up doughnuts for the daycare the girls go to--Sophie always gets a reward after being poked plus it's the end of their two weeks in daycare together, on Monday Sophie starts Kindergarten and Wendi starts daycare at my work three days a week.

I feel that I'd really adapted to the new Soph.  I feel empty of energy to put into this again.  I'm curious, who pulled out the rug from under us just after we got our footing?  I'm hopeful that this will be easy to solve.  I'm grateful for a supportive community.