We're Home

We made it home tonight from four full days in Wisconsin.  It was great to be away from it all and take a breather from life.  It was great to talk to family and be assured of everyone's ongoing prayers and support.  Sunday, Sophie started the two pills at night--she was knocked out by them.  It was almost as if she was drunk as she walked dizzily and bumped off of walls.  Over the week she's also picked up the side-effect of non-stop hunger.  Every hour, no matter what she's already eaten in the day, she's begging for more food--the amount she ate today on our drive home alone was jaw-dropping.

Back to our vacation, for me, the greatest moments of the trip were those when I was with Joe in an aluminum boat, gliding over the water.  The beautiful blue sky above us sprinkled with fluffy white clouds, the green trees surrounding the lake, the water surrounding me and lapping against the boat under my feet, the pure air.  I know it may be cliche but I do feel closer to God in the Northwoods.  As we rode over the waves, I tipped my head to the Heavens and poured my heart out in prayer.  I'm confident they were heard.

On a more disappointing note, I have not yet noticed any big reduction in seizures.  I feel like the medicine makes her so tired that she has a lot more time drenched in drowsiness which is filled with seizures.  Tonight as I put her to bed, she had a large one and it broke my heart.  I long for her to go to bed, take her medicine without a seizure in the middle of it.  Tonight when she had it she was saying, "Mommy, I love y...Tara, you're beautiful".  I feel the same about her.